Motivation is the key!!

I have photos of me at the wheel of my 38' motor home with my eye lids taped open!!!!  There are times when we all have to reach down deep inside and come up with a solution.  Most of the time while I was living in the bus in the road, I would sit out a "tough time" with my eyes but sometimes I just had to leave.  Scotch tape works!  As I approach the 3 mos. mark since I received Botoxin injections, the spasms sneak in on me when I least expect them.  I have learned to compensate too.  I have learned to slow down.  I was always very energetic and did everything in a hurry.  I am fortunate that I can do several things at one time.  I also have the ability to be aware of what is going on all around me all of the time.  That is a gift as far as I am concerned and one I share with my eldest grandson.  I believe my son Matthew was also able to tap into many things at one time.  I shared my book title and a bit of my story today on the Blepharospasm Official site, on the bulletin board.  Hopefully, my story will inspire others who have BEB and Sjogrens Syndrome.

When I was struggling along in my near blindness to live a "normal" daily life, one of my neighbors called in the NC Assoc. for the Blind.  They soon came to my house to interview me.  I suppose to "see" for themselves if I needed their assistance.  Within a week after our meeting, I was provided with a large but portable tape deck where I could listen to books on tape.  The books were chosen from an enormous selection in a catalog.  It worked very much as Netflix does now but there was no fee whatsoever.  Those books on tape gave me much pleasure.   Then an appointment was made for the NCAB to teach me how to move about, cook, do ordinary household chores and care for myself in my new blind state.  Over the course of the 9 months I was blind,  I was interviewed for a seeing eye dog and a white cane.  As it turned out, I didn't need either.


My impressions of the NCAB were and are today very positive.  They were compassionate and caring people.  They responded quickly although they were not called in on my case for several months.  People helping people that is what this world is about.  Living in "right-mindedness"!