Wednesday, February 8, 2012

Motivation is the key!!

I have photos of me at the wheel of my 38' motor home with my eye lids taped open!!!!  There are times when we all have to reach down deep inside and come up with a solution.  Most of the time while I was living in the bus in the road, I would sit out a "tough time" with my eyes but sometimes I just had to leave.  Scotch tape works!  As I approach the 3 mos. mark since I received Botoxin injections, the spasms sneak in on me when I least expect them.  I have learned to compensate too.  I have learned to slow down.  I was always very energetic and did everything in a hurry.  I am fortunate that I can do several things at one time.  I also have the ability to be aware of what is going on all around me all of the time.  That is a gift as far as I am concerned and one I share with my eldest grandson.  I believe my son Matthew was also able to tap into many things at one time.  I shared my book title and a bit of my story today on the Blepharospasm Official site, on the bulletin board.  Hopefully, my story will inspire others who have BEB and Sjogrens Syndrome.

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